Friday, October 10, 2014

Prescription Medications

There aren't too many procedures performed at a hospital that don't require at least some kind of medication before, during and/or after the procedure.

With my cancer (malignant neoplasm, floor of mouth), extensive dissection and reconstruction of my mouth was required during the 8 hour procedure. Parts were harvested from my arm and leg to help with the reconstruction. A tracestomy and PEG Tube were implanted, all of my lower teeth were removed, part of my tongue was cut off and replaced with part of my arm and leg and the cancer tumors had to be removed. Mouth pain is something that has always been a 'sore' area for me.

While I was in the hospital, I was on morphine, although I don't know how much or how often. What I do know is that pain was seemingly well-controlled. I also remember, however, that there was a lot I did not remember.

Then, seven days after surgery, I was released and was given two pints of liquid Hyrdrocodone (I had the PEG-Tube and was unable to use my mouth for any purpose).

Throughout the course of the recovery, I was prescribed many drugs. Some were for various, basic maintenance but others were narcotic pain relievers. These included:
  • Hydromorphone
  • Oxycodone
  • Tramadol
  • Fentanyl (patch)
  • Gabapentin
We had to keep track of all medications taken throughout the day to make sure they were taken and also to make sure I did not take any over the prescribed dosage.

When the medical team was having difficulty determining why pain was still an issue, one suggested that I might have to find a pain level I am comfortable living with. That did not sound too promising.

Sometime I would take over-the-counter pain relievers to supplement what was prescribed, but I had to be careful since all of those come with precautions such as the possibility of liver or stomach damage.

I began to watch closely the efforts of John Morgan and the United for Care, People United for Medical Marijuana, campaign.

According to the United for Care website, there were two reasons why Morgan
supports this measure:

"The two reasons behind his vocal support of the medical marijuana legalization effort in Florida, he says, started when he saw how medical cannabis helped his father, who had been diagnosed with emphysema and esophageal cancer, relive his pain.

The second reason, according to Morgan, stems from the damage he’s seen caused by the high-powered prescription pain medications his clients are often given by a doctor following an injury.
Also, 'as a personal injury attorney,' Morgan said, 'I’ve seen people in pain who end up on oxycodone. And 16,000 people die from that every year. It’s highly addictive.'”
Honestly, I cannot say if prescribed medical marijuana would have been beneficial to me in controlling pain. I was never given the chance. But I do see the support comes from some very prominent and influential people in Florida.

I will continue to watch this campaign very closely. The State of Florida has the "Constitutional Amendment X, Section 29 Use of Marijuana for Certain Medical Conditions" on the November 4 ballot.

Again, I am not sure if medical marijuana would have helped me nor do I know if my condition would have qualified me for a medical marijuana prescription, but based on the difficulty the doctors are having controlling my pain, I remain open to any alternatives.




16 comments:

  1. Eric, an oral cancer patient from Washington, said:
    "Living in Washington State and knowing my gardner I get more of an education than most. I use it for residual pain & neuropathy from treatment to help me through physical therapy. I'm a fan and benefitted from both the flower, and oils, but everyone is different so what works for me may not work for others.

    Being free from the opiates however has been the biggest benefit as I suffered so many side effects. I've gained weight and am making great progress despite massive physical limitations after treatment."

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  2. Kim from Tennessee wrote:
    "I believe the best medicines already exist naturally on our earth. Marijuana is one of them."

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  3. Tracy had a different viewpoint: " Totally against it...it will not be able to be controlled effectively. Lok at how prescription drugs are abused. My back aches..bu thet doesnt mean I need pills or weed to get through the day."

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  4. Louis from Chicago: " I've been working in the drug rehab business 25 plus years and all illegal drugs should be legalized and controlled by the government. Right now there's a big heroin problem happening in the US because the hospitals are making their patients into addicts and when the patient can no longer afford the script drugs they go to the street drugs where it is so much cheaper, And yes Tracy the crime would go down and make it easier on law enforcement. And the tax revenue would be great enough for all states to meet their budgets and maybe some raises."

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  5. Janet from United Kingdom: : When the pain is chronic and constant and takes away your life then yes I am all for it. Prescription drugs are harmful too."

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  6. Joanne from Michigan wrote: " I would much rather see marihuana legalized and alcohol made illegal. But we all know how that worked."

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  7. Tracy wrote again: "I think it would make my job harder..just as pprescription pain meds does. It is so very very difficult to keep someone "drug free"...when they are running to the ER all the time because they "stubbed their toe". It will be even ha.rder w marijuana to detrmine if they are abusing it or not. I am a Probation Officer."

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  8. Some had more generalized comments like Michelle: "Alot of good points here..." and Zenda who simply said: "Bruce G. Larson, thank you for your blog."

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  9. Shirley from Florida said: "If it helps someone suffering I am for legalizing."

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  10. Another note from United Kingdom, this one from Shae: " It's not available in the UK at all (even medicinally) so it's hard to ask the questions about how to try. I saw my pain specialist today who says she knows I must be in a lot of pain but that I may have to learn to live with it. Little does she know, I have been living with it for 4 years. I'm used to it. If I'm honest, I would try the oil if I had access. However, I am surviving and think that we often have no choice but to do so for the most part."

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  11. Joane in Michigan raised a good point: Hate addicts? It's a disease. Be kind. And before you say they choose it, please remember that many addicts are made by pain....and doctors."
    Most addicts don't set out to become addicted. This includes tobacco, alcohol, narcotic drugs and other categories. Addiction is defined as a disease.

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  12. Christine admits she is addicted to prescription pain killers and is hoping for an alternative: "if it helps - use it! (referring to marijuana). I am addicted because of my medical problems and via my doctor to many drugs - heavy stuff like Morphine.I would prefer to smoke a spliff.(shades of the 1960s)"

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  13. This comment has been removed by the author.

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  14. Kimberly in Tennessee added to her original response: "Why is a synthetic compound a better choice than a natural one when it comes to pain control? Addiction can be an issue with anything. Is it reasonable to deny relief to the ones who truly need relief because some idiots choose to abuse? If you want to end addiction, end all addiction (tobacco, porn, video games, food, alcohol, blah, blah, blah). The pharmaceutical moguls don't want to share any of the wealth with a backyard or Mom & Pop operation. I want to quit vilifying the reasonable options for a comfortable life for those people who are suffering. Our beloved government just reclassified pain meds again, making them even harder to obtain for everyone, including those who are using them for legit purposes. It's a nightmare. Get government out of our healthcare. They don't run anything well. Seriously."

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  15. Eric in Washington: "cannabis in WA isn't expensive however it isn't covered under insurance like the opiates either.

    Studies have shown that marijuana lessens the amount of pain medications chronic pain patients use, explaining recent news showing OD deaths from pain medications are down 25% in states that have legalized it medically.

    (http://www.cbsnews.com/.../medical-marijuana-laws-reduce.../)

    I was on heavy opiates for two years, 18 months of those on Fentanyl, which I was dialed up to 200mcg/hour at one point. FYI, fentanyl is the strongest opiate pain medications they'll give to a human, roughly 100x stronger than heroin.

    MJ was the only way I came off of the pain meds, and am currently able to get through physical therapy working the paralyzed side of my face, and neck. Neuropathy, or nerve pain, has been the worst side effect for me to deal with post treatment.

    The right side of my face was paralyzed after my mandiblectomy, as my facial nerve was compromised during the surgery due to the size and location of my primary tumor. I had a nerve graft to try to reinvervate the paralyzed side of my face where they took my 12th cranial nerve (tongue) and grafted it into the damaged facial nerve (7th cranial nerve).

    Paralysis often comes with neuropathy and outside of low dose tricyclic antidepressants, and anti-siezure medication (like gabapentin/neurontin), which didn't work for me, there really isn't many options. MJ has worked well allowing me enough of a reprieve to work the atrophied muscles, four years after the surgery I started getting function back in my face, but the pain can be excruciating.

    I'm seeing progress daily in my face and neck, and am hopeful for more function, but the best part is not feeling like a criminal for using cannabis to get through. I'm thankful for the forward thinking people in my state, which is one of the reasons I moved."

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  16. Eric, Thanks for this detailed analysis. It is great and I can certainly relate to it. I have continued pain in my gums and jaw with no real explanation, The radiation oncologist referred me a pain management specialist He prescribed Gabapentin and Fentanyl patch. Still. no real relief. There was talk of Neuropathy and I believe that is the problem. I have surgery again 10/28 to remove a lymph node that increased in size since the last scan, have 2 nodules removed from the original surgery and to do a biopsy on the gums. We will see what happens then. Until the surgery, they added Hydromorphone to help out.

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